The Global Alliance of Sickle Cell Disease Organizations (GASCDO) was created with the belief that the quality of care and treatment of those living with Sickle Cell Disease (SCD) should not be determined by one’s geographical location. As an organization, we pride ourselves on our mission to improve the quality of life of those suffering with Sickle Cell Disease on an international scale. We truly wish to see a worldwide change in a drastically positive direction in various aspects of the Sickle Cell Disease experience.
THE VISION: To reduce global incidence of sickle cell disease (SCD) and ensure equitable access to optimal care and treatment by all people with SCD worldwide.
THE MISSION: To unify and add value to national organizations globally through a focus on awareness, education, capacity building, advocacy, research, management, treatment, and global partnership.
We are a truly global organisation working across the 5 continents with 16 national organisations that have voting status.
Our activities focus on:
- Working with partners to develop capacity building programs
- Become a steady source for the dissemination of information through member organizations to beneficiaries
- Collaborate with researchers to provide updates on cures, treatment, and care
- Assisting member organizations in the mapping of their operational environment
- Assisting them where necessary with access to resources
- Assisting them coordinate their activities with their members.
We are fortunate to have a committed Board of Trustees who are working hard to achieve our goals. They are supported by volunteers to whom we owe our thanks for their time and effort in making a difference to their community.
We intend to renew the board and are looking for committed and experienced on people who are interested in the work that we do and who can continue to add value to the organisation to enable us to make a difference to the communities that we serve.
Trustees will set the policy direction, develop a vision of where the organisation will be at the next milestone, supervise and support key staff who will be involved in the technical duties of the operation and be accountable to all the stakeholders. This position will fit anyone who is interested in health inequality issues community cohesion and diversity issues and has management, financial, legal, marketing skills with experience of decision making.
The time commitment should be an estimate of twelve days in a year and though the position is unpaid it will require commitment as we are in a phase of recovery and adjusting to the new normal. However, we expect the responsibilities to be shared amongst the trustees who will have the right complement of skills.
The GASCDO Board should be made up of about 11 to 15 people who will reflect the diversity of the stakeholders in the project.
Those interested in being considered this exciting and wonderful position should drop your CV to gascdochair@gmail.com
